Doron - the dancing heart patient. My first blog. And like any other blogger I was searching for a 'catchy' title. First I came up with: 'From dancer to heart patient'. But the thing is: I didn't change to a heart patient. We just found out that I am, since I was born.
~ I danced through my life. Facing this news, but keep on dancing. Will you dance with me? ~
The last months I went through a lot of research and it turns out I have more then one congenital heart defect: 'Aberrant pulmonary veins' + 'Sinus venosus defect'.
The last months I went through a lot of research and it turns out I have more then one congenital heart defect: 'Aberrant pulmonary veins' + 'Sinus venosus defect'.
These congenital defects cause other (heart) defects again: my heart is processing 2,3 times as much blood as a 'normal' heart, which gives a lot of pressure on the lungs. I am having a dilated right ventricle and they suspect a Tricuspid valve regurgitation (a leak from the right atrium to the right ventricle). As you hear and see, it's chaos!!
Drawn by my cardiologist @ VUmc
Right now it is not life-threatening, but they did tell me not to wait too long.
So, to make a long story short: In the next weeks/months I will prepare myself for an open heart surgery. I am quite in shock about this 'news', still processing it. It is going to be tough, and I will be 'under construction' for quite a while.. But I hope to come back:
Stronger than ever!!
So, to make a long story short: In the next weeks/months I will prepare myself for an open heart surgery. I am quite in shock about this 'news', still processing it. It is going to be tough, and I will be 'under construction' for quite a while.. But I hope to come back:
Stronger than ever!!
I started this blog to share my story. Follow me, dancing through this phase of life.
Lieve Doron,
ReplyDeleteA dancing warrior that is!. You are strong and brave at the same time and you can do this!...
Hoi Doron
ReplyDeleteIk ga je volgen hier en aan je denken. Moedig initiatief. Prachtige titel ook. Blijf altijd dansen in het leven, op wat voor manier dan ook. Heel veel sterkte de komende tijd. Grt Peter
Hi Doron,
ReplyDeleteDat is inderdaad heftig nieuws. Ik ga je volgen en wens je heel veel sterkte de komende tijd. Het zal zwaar zijn, maar jij hebt ook veel kracht en uithoudingsvermogen. Niet alleen fysiek ;-)
Groeten,
Ferdinand
Lieve Doron, wat ben je toch een held!!! En met jouw attitude ga je er damn right dansend doorheen, ik weet het zeker! xxxxx Deb
ReplyDeleteHi Doron, I believe you can go through it and still be this happy dancer that you are now! :) Zuzka
ReplyDeleteHoi Doron, heftig nieuws. Ik schok er van. Wat knap van je dat je dit wilt delen met andere via een blog. Ik wens je heel veel sterkte toe de komende periode. Je hebt gelijk, van iedere tegenslag kom je altijd veel sterker uit. Zet m op. Knuffel van Marcia.
ReplyDeleteHey doron! Heel veel sterkte de komende tijd! Je bent een held! X anouk
ReplyDeleteDoron, our prayers and thoughts are with you. Wish we could give hugs too!
ReplyDeleteI believe you can go through it and still be this happy dancer.
ReplyDeletegclub
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